How to read the Genetic Code: a journey into genetics and rare diseases, 2025

How to read the Genetic Code: a journey into genetics and rare diseases, 2025

Tuesday, February 11, 2025
How to read the Genetic Code: a journey into genetics and rare diseases, 2025

On February 11-14, 2025, the Medical Students Society of Craiova and the Human Genomics Laboratory (LGU - UMFCV), with the support of UMF Craiova, the Student Circle of Cell and Molecular Biology and the Association of Little People, organize the second edition of the project "How to read the Genetic Code: a journey into genetics and rare diseases". This initiative was launched last year in memory of Prof. PhD. Mihai Ioana, a landmark in the field of medical genetics in Romania, whose contributions have had a significant impact on genomic research and education on rare diseases.
The event is organized in February, the month of International Rare Disease Day. This event aims to continue the campaign to raise awareness of the importance of early diagnosis, advanced research and community support for people affected by rare genetic disorders.
The activities will begin on February 11, when students from UMF Craiova will visit high schools to deliver educational presentations. They will be at:
  • "Carol I" National College from 8:30 to 9:20 AM
  • "Elena Cuza" National College from 10:30 to 11:20 AM
  • "Ștefan Velovan" Pedagogical College from 1:30 to 2:20 PM
Opening of the art exhibition Every Voice Counts: why we talk about rare diseases
 
In partnership with the "Marin Sorescu" High School of Arts, an exhibition of students' artwork will be inaugurated, showcasing visual interpretations of the emotions and experiences of patients with rare diseases. This exhibition aims to provide an artistic perspective on the impact these conditions have on daily life, inviting the public to reflect on the importance of empathy and support for the patient community. The opening event will take place on February 14, at 12:00 PM, in the Aula Magna.
Also on February 14, at 1:00 PM in the Aula Magna, the national conference "Every Voice Counts: Why We Talk About Rare Diseases" will take place, featuring special guest Dorica Dan from the National Alliance for Rare Diseases Romania, NoRo Center, and APWR Zalău.
At 3:00 PM, the Human Genomics Laboratory will open its doors to students, offering them the opportunity to explore research activities in molecular genomics up close. This interactive experience will allow them to discover the applications of genomic medicine and understand the importance of research in diagnosing rare genetic disorders.
We invite you to join us on this educational journey and become part of the effort to transform the challenges of rare diseases and genomic medicine into opportunities for a better future!

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Updated on 2/11/25, 8:18 AM